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This gives me hope. Truly, I can’t express enough how this captures my frustration so well and also manages to give me so much hope at the end. It makes me wanna cry.

A bit of a personal experience (don’t feel like you have to read it, please): I’m currently on this journey, after my therapist finally convinced me after years to try going to the doctor again. Last time I went, I was a teenager and everything was ‘growing pains’, took years to undo the belief the pain was normal. The doctor I’m going to now was recommended to me and she’s great, takes my pain seriously and even asked for more tests, but when I brought up a rare syndrome that’s my main suspicion, she shrugged it off (bc she thinks I have another chronic thing, but one that doesn’t explain all my symptoms). I truly don’t know how to feel. With my psychiatrist, it’s the same. I don’t want to go to another one, bc my current one is great for one of my disorders, but she won’t even consider the possibility of the other one I’m all but certain I have. It’s disheartening and I truly don’t know what to do. (End of the personal experience bit, it’s safe to continue reading from here.)

But this game truly makes me believe there’s a chance it can all go right, even if it takes time.The journey might be hell and it definitely shouldn’t be like this, but maybe I can hope for a happy ending. Truly, thank you for this.

Strength to you, stranger! If you strongly think you're a zebra and the tests don't find anything definitive, insist that they take your symptoms seriously and get a second opinion on what you could have. Good luck!!