My sleepiness/fatigue is certainly less than seen here (and I'm a guy...), but I can still relate to about 90% of this, though when I had an MSLT done, the diagnosis was ideopathic hypersomnia without narcolepsy... which is maybe even more of a non-answer than Rae got. They found some sleep apnea, too, but they don't think that the small amount of that would cause the level of sleepiness/fatigue that I'm dealing with.
In real life, I'm at the holistic doctor phase, where I'm taking a ton of expensive supplements that they recommended (plus Valtrex, since my Epstien-Barr antibody markers are really high) but I'm questioning its efficacy. He gave me a timeline of like 6 months before I can really hope to see an improvement.
I'm not sure to keep on going through the barrage of expensive doctors or not...
//Like Rae, I started bouncing between doctors about my illness in my early teens.
...And unlike Rae, I'm nearing 40 and still don't have good answers.