Info dump from living in an HEDS family: If you haven't yet, to be safe you should get a referral to see a spine doc or neurologist. Otherwise one of those shoulder posture braces may help relieve some of the pressure. Yoga could help if you don't have access to a gym. If you do have a gym, then you can (CAREFULLY) try light weights focusing on the surrounding stability muscles. When one area of your back is staging a revolt, other muscle groups have to pick up the slack and light exercise can help to work out any kinks and increase muscle flow. Ultimately its all trial an error, listen to your body when figuring out what helps.